It's one am in the chemo house and the steroids are keeping me awake. Took them at 10 and 3 today as I was late getting going, but there is no sign of sleep at the moment.
Should have gone out for a long walk today to make me tired but my muscles are so out of practice I struggled to get across the road to the pharmacy. Should I be working out to keep some muscle or should I be taking it easy? What's best for me?
Sleep would be good, but no sign of it.
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Thursday, 4 October 2012
Wednesday, 3 October 2012
Hiccups AGAIN!
Had hiccups on and off all afternoon and evening. Calmed down about 10:30 pm so went to bed with Sharon. Awake around 2:15 am with hiccups. Moved into front bedroom to leave Sharon in peace. She says I went back to sleep and was snoring and hiccuPping. Awake again around 5:30 no hiccups so went back to bed with Sharon. Hiccups off again now at 7:30 am.
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Home!
Got home just after 10:00 am. So much better having a single room and reduced chemo regime. Nowhere near as tired and have managed to eat better today. Cornflakes for breakfast, crispbread cheese and olives for lunch and a cream soda float and jelly babies for high tea. Looking forward to Sausage and jacket potato for tea.
The rehydration routine keeps you on the move every 3 hours so I didn't have a great night. Topped up with an hours sleep on the bed with the sun streaming in the window to keep me warm after I had showered.
Lauren has just called in to see me so if anything exciting happens I will post again later.
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The rehydration routine keeps you on the move every 3 hours so I didn't have a great night. Topped up with an hours sleep on the bed with the sun streaming in the window to keep me warm after I had showered.
Lauren has just called in to see me so if anything exciting happens I will post again later.
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Tuesday, 2 October 2012
Round 4 Day 2 Part 2
Nice quiet day of Chemo therapy, the joys of a single room. Have to admit my mental/emotional state is much better in here than it has been in the 4 person wards. That may also be because the chemo regime has changed, no Doxorubithingy, the one that makes you pee red. Haven't looked at the other side effects of that one recently but I know one of them made you prone to depression.
The alarm is going off on the drip at the moment, the Mesna has finished I think. Becky is busy doing someone else at the moment, but she will be along soon, in fact she has just arrived. Forgot to say earlier, being looked after by 2 Beckies (correct plural? What is the collective noun for Beckies?) today
Nausea levels are about the same as last time, the anti sickness medication has stayed the same. Really can't face much food, but cant take steroids on an empty stomach as they give you ulcers. So a rock and a hard place, eat and feel ill, don't eat and face ulcers.
Latest calculation of finish times says hat I should be done about 7:00 am tomorrow! The removal of Doxorubithingy has taken 8 hours out of the schedule, currently on 3 hours of Ifosfamide and then 12 hours of re-hydration and Mesna. So could be home for breakfast if I can get a lift off Sharon at that time of the morning.
The alarm is going off on the drip at the moment, the Mesna has finished I think. Becky is busy doing someone else at the moment, but she will be along soon, in fact she has just arrived. Forgot to say earlier, being looked after by 2 Beckies (correct plural? What is the collective noun for Beckies?) today
Nausea levels are about the same as last time, the anti sickness medication has stayed the same. Really can't face much food, but cant take steroids on an empty stomach as they give you ulcers. So a rock and a hard place, eat and feel ill, don't eat and face ulcers.
Latest calculation of finish times says hat I should be done about 7:00 am tomorrow! The removal of Doxorubithingy has taken 8 hours out of the schedule, currently on 3 hours of Ifosfamide and then 12 hours of re-hydration and Mesna. So could be home for breakfast if I can get a lift off Sharon at that time of the morning.
Day 2 in The Hotel Churchill
I know part of this is because I am in a room on my own, but this feels like proper care. Ali came in to say goodbye at the end of her shift and Becky came in to say hello and explain what is going on today.
Fairly good night considering there were 3 bag changes on the drip. Was feeling very nauseas last night before I went to sleep, much better this morning, I have managed banana and corn flakes for breakfast. Have now looked at the lunch and dinner menu for today and don't fancy any of it.
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Fairly good night considering there were 3 bag changes on the drip. Was feeling very nauseas last night before I went to sleep, much better this morning, I have managed banana and corn flakes for breakfast. Have now looked at the lunch and dinner menu for today and don't fancy any of it.
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Monday, 1 October 2012
Got a bed!
Well I now have a single en suite room at The Hotel Churchill. Chemo is underway and everything is looking good for a reasonable finish on Wednesday.
Ali is on tonight, so all will be good.
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Ali is on tonight, so all will be good.
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Round 4
Arrived at Hotel Churchill at 10:15 this morning to find they don't yet have a bed for me. Junior Sister (see I corrected it Becky) Becky sent me away for a coffee so she could have her breakfast and then there might be a bed.
Went for a coffee and when we returned at 11:00 there still wasn't a bed. So we are now sat in a side room with no bed. Chemo will start, bed or not and a bed should become available during the day. If it doesn't I will sleep on the sofa in this side room.
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Went for a coffee and when we returned at 11:00 there still wasn't a bed. So we are now sat in a side room with no bed. Chemo will start, bed or not and a bed should become available during the day. If it doesn't I will sleep on the sofa in this side room.
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